Understanding Exercise-Induced Pelvic Pain in Endometriosis
Existing research suggests that exercise may help improve pain and quality of life for some people with endometriosis. However, this literature often lacks nuance, offering limited guidance on what types of exercise, at what intensity or duration, and when during the menstrual cycle physical activity may be most supportive or most likely to worsen symptoms. This study aims to help fill that gap by centering patient-reported experiences of exercise-induced pelvic pain.
Why This Study Matters
Physical activity is often recommended to people with endometriosis, yet many patients report that exercise can worsen pelvic pain, sometimes severely or unpredictably. Despite these experiences, there is limited research documenting exercise-induced pelvic pain or providing evidence-based guidance on how to move safely and comfortably. This study aims to center patient experiences and begin building the evidence needed to inform clinical recommendations.
About the Study
WHRAC is developing a pilot survey to better understand the frequency, characteristics, and timing of pelvic pain associated with exercise among people with endometriosis. The survey focuses on when pain occurs (during vs. after exercise), how long it lasts, the types and intensity of activity involved, and how symptoms vary across the menstrual cycle or with hormonal treatment.
Expert Roundtable Review
Before launching the survey more broadly, WHRAC plans to convene a multidisciplinary expert virtual roundtable to review the survey instrument in Spring 2026. This group will include clinicians, researchers, physical therapists, and patient advocates with expertise in endometriosis, pelvic pain, and exercise physiology. The goal is to ensure the survey reflects both clinical relevance and lived experience, and to identify key questions for future research and guidance development. If you are interested in participating, please contact us at info@whrac.org.
Get Involved
WHRAC is currently developing this study and convening an expert roundtable to refine the survey instrument. If you have lived experience with endometriosis and exercise-related pelvic pain, or professional expertise in endometriosis, pelvic pain, or exercise science, we invite you to share your interest in future research or discussions related to this project.